Braelyn is a 7-year-old girl who was diagnosed with DRESS Syndrome after starting three anti-seizure medications. It all started with rashes, high fevers, and several misdiagnoses.
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Braelyn
USA
Welcome to the DRESS Syndrome Foundation
We're glad you found us.
Announcing our 2024 DRESS Heroes!
Meet the medical professionals from around the world whom DRESS patients
and loved ones nominated for providing exceptional treatment and care.
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DRESS Syndrome is a severe, cutaneous, adverse, delayed reaction from primarily taking one of over 50 medications. This life-threatening condition can cause major organ dysfunction and may result in long-term complications.
DRESS stands for Drug Reaction with Eosinophilia and Systemic Symptoms. The condition also goes by the name Drug-Induced Hypersensitivity Syndrome (DIHS).
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The first symptoms of DRESS Syndrome are usually a fever followed by a rash and, often, facial swelling. DRESS symptoms can progress to severely affect multiple organs, including the liver, kidneys, lungs, and heart. Some of these symptoms can emerge weeks to months after the first signs of DRESS show, meaning doctors should monitor patients for a long time.
Is DRESS Syndrome rare?
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While currently thought of as a "rare" condition, it is under-diagnosed and under-reported, and many doctors have never treated a DRESS patient. To date, 1 in 1,000 to 10,000 people may develop DRESS Syndrome. Many patients have been in and out of the ER, are hospitalized, and undergo many tests before receiving a DRESS diagnosis.
Fortunately, you can find a way forward.
We understand what you're going through.
You are not alone.
At the DRESS Syndrome Foundation, we’re a collaborative network of patients, families, researchers, and physicians dedicated to supporting people experiencing DRESS. We also educate the public and medical communities about the syndrome, and advocate for advanced research and treatment.
Our goal is to support patients and their loved ones while deepening medical awareness. You deserve answers. You deserve to receive the treatment that helps you survive DRESS Syndrome.
We’re here to help.
Explore more details about common DRESS Syndrome symptoms. Download our resource Know the Facts About DRESS Syndrome.
